Youth with Tourette syndrome: Parental perceptions and experiences in the Australian context

O’Hare, D; Eapen, V; Grove, R; Helmes, E; McBain, K; Reece, J

Youth with Tourette syndrome: Parental perceptions and experiences in the Australian context

O’Hare, D Eapen, V Grove, R

Helmes, E McBain, K Reece, J

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Publication Type:: Journal Article
Citation:: Australian Journal of Psychology, 2017, 69 (1), pp. 48 - 57
Issue Date:: 2017-03-01

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Field	Value	Language
dc.contributor.author	O’Hare, D	en_US
dc.contributor.author	Eapen, V	en_US
dc.contributor.author	Grove, R https://orcid.org/0000-0001-6669-9385	en_US
dc.contributor.author	Helmes, E	en_US
dc.contributor.author	McBain, K	en_US
dc.contributor.author	Reece, J	en_US
dc.date.issued	2017-03-01	en_US
dc.identifier.citation	Australian Journal of Psychology, 2017, 69 (1), pp. 48 - 57	en_US
dc.identifier.issn	0004-9530	en_US
dc.identifier.uri	http://hdl.handle.net/10453/127710
dc.description.abstract	© 2016 The Australian Psychological Society Objective: To enhance understandings of the impact of Tourette Syndrome (TS) on the parents of diagnosed youth. Specifically, the current study aimed to explore and identify the multidimensional stressors associated with parenting a child or adolescent with TS in the Australian context. Method: As part of a larger qualitative and quantitative community-based study, semi-structured telephone interviews with 22 mothers of youth with TS were conducted regarding their experiences. Results: The study identified parent, child, and contextual factors that contributed to parental stress, with many mirroring the experiences of parents of children with other chronic paediatric disorders. However, several TS-specific factors also emerged from the data analysis, highlighting the unique difficulties encountered by parents of diagnosed youth. Serious deficits in professional expertise and services currently available for the TS community were also identified. Conclusions: Findings indicate the generally unacknowledged challenge of parenting a child with TS, which equates with that experienced in the context of other serious chronic paediatric disorders. Results also indicate the need for psychosocial support for both child and parent, and greatly improved access to well-informed mental health and educational services in the Australian context.	en_US
dc.relation.ispartof	Australian Journal of Psychology	en_US
dc.relation.isbasedon	10.1111/ajpy.12111	en_US
dc.subject.classification	Social Psychology	en_US
dc.title	Youth with Tourette syndrome: Parental perceptions and experiences in the Australian context	en_US
dc.type	Journal Article
utslib.citation.volume	1	en_US
utslib.citation.volume	69	en_US
utslib.for	1701 Psychology	en_US
utslib.for	1702 Cognitive Sciences	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Graduate School of Health
utslib.copyright.status	closed_access
pubs.issue	1	en_US
pubs.publication-status	Published	en_US
pubs.volume	69	en_US

Abstract:

© 2016 The Australian Psychological Society Objective: To enhance understandings of the impact of Tourette Syndrome (TS) on the parents of diagnosed youth. Specifically, the current study aimed to explore and identify the multidimensional stressors associated with parenting a child or adolescent with TS in the Australian context. Method: As part of a larger qualitative and quantitative community-based study, semi-structured telephone interviews with 22 mothers of youth with TS were conducted regarding their experiences. Results: The study identified parent, child, and contextual factors that contributed to parental stress, with many mirroring the experiences of parents of children with other chronic paediatric disorders. However, several TS-specific factors also emerged from the data analysis, highlighting the unique difficulties encountered by parents of diagnosed youth. Serious deficits in professional expertise and services currently available for the TS community were also identified. Conclusions: Findings indicate the generally unacknowledged challenge of parenting a child with TS, which equates with that experienced in the context of other serious chronic paediatric disorders. Results also indicate the need for psychosocial support for both child and parent, and greatly improved access to well-informed mental health and educational services in the Australian context.

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http://hdl.handle.net/10453/127710