Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia

Hemsley, B; McCarthy, S; Adams, N; Georgiou, A; Hill, S; Balandin, S

Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia

Hemsley, B

McCarthy, S Adams, N Georgiou, A Hill, S Balandin, S

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Publication Type:: Journal Article
Citation:: Journal of Intellectual and Developmental Disability, 2018, 43 (4), pp. 506 - 514
Issue Date:: 2018-10-02

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Field	Value	Language
dc.contributor.author	Hemsley, B https://orcid.org/0000-0002-6255-3140	en_US
dc.contributor.author	McCarthy, S	en_US
dc.contributor.author	Adams, N	en_US
dc.contributor.author	Georgiou, A	en_US
dc.contributor.author	Hill, S	en_US
dc.contributor.author	Balandin, S	en_US
dc.date.issued	2018-10-02	en_US
dc.identifier.citation	Journal of Intellectual and Developmental Disability, 2018, 43 (4), pp. 506 - 514	en_US
dc.identifier.issn	1366-8250	en_US
dc.identifier.uri	http://hdl.handle.net/10453/130662
dc.description.abstract	© 2017, © 2017 Australasian Society for Intellectual Disability, Inc. Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.	en_US
dc.relation.ispartof	Journal of Intellectual and Developmental Disability	en_US
dc.relation.isbasedon	10.3109/13668250.2017.1294249	en_US
dc.subject.classification	Rehabilitation	en_US
dc.title	Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia	en_US
dc.type	Journal Article
utslib.citation.volume	4	en_US
utslib.citation.volume	43	en_US
utslib.for	1103 Clinical Sciences	en_US
utslib.for	1607 Social Work	en_US
utslib.for	1608 Sociology	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Graduate School of Health
utslib.copyright.status	closed_access
pubs.issue	4	en_US
pubs.publication-status	Published	en_US
pubs.volume	43	en_US

Abstract:

© 2017, © 2017 Australasian Society for Intellectual Disability, Inc. Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.

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http://hdl.handle.net/10453/130662