The lived experience of refractory breathlessness for people living in the community

Tieck, K; Mackenzie, L; Lovell, M

The lived experience of refractory breathlessness for people living in the community

Tieck, K Mackenzie, L Lovell, M

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Publication Type:: Journal Article
Citation:: British Journal of Occupational Therapy, 2019, 82 (2), pp. 127 - 135
Issue Date:: 2019-02-01

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Field	Value	Language
dc.contributor.author	Tieck, K	en_US
dc.contributor.author	Mackenzie, L	en_US
dc.contributor.author	Lovell, M https://orcid.org/0000-0002-1407-2748	en_US
dc.date.issued	2019-02-01	en_US
dc.identifier.citation	British Journal of Occupational Therapy, 2019, 82 (2), pp. 127 - 135	en_US
dc.identifier.issn	0308-0226	en_US
dc.identifier.uri	http://hdl.handle.net/10453/136555
dc.description.abstract	© The Author(s) 2018. Introduction: Refractory breathlessness occurs at rest or on minimal exertion and persists chronically despite optimal treatment of the underlying cause. The burden and prevalence of breathlessness is high, yet symptoms remain under-treated and those affected struggle daily with the condition. This study aims to gain a greater understanding of the lived experience of refractory breathlessness and its effect on daily activities. Method: Participants were recruited from a Sydney-based outpatient breathlessness clinic. An exploratory qualitative approach was undertaken with individual, semi-structured interviews, using NVivo software to conduct thematic analysis. The study recruited consecutive patients until thematic saturation was reached. Results: Six participants were interviewed and four main themes identified. 1. Living on the edge, referring to the extreme feeling of breathlessness experienced by patients; 2. Social meanings of breathlessness, describing the significance of social support; 3. Reduced to the basics, referring to the effect breathlessness has on basic daily tasks; and 4. Sources of security, which describes the measures participants take to protect themselves from their own breathlessness. Conclusion: Participants noted the importance of functional participation for improved engagement and quality of life. There is scope to develop specific interventions and occupational therapy services incorporating self-management and equipment prescription for people with dyspnoea.	en_US
dc.relation.ispartof	British Journal of Occupational Therapy	en_US
dc.relation.isbasedon	10.1177/0308022618804754	en_US
dc.subject.classification	Rehabilitation	en_US
dc.title	The lived experience of refractory breathlessness for people living in the community	en_US
dc.type	Journal Article
utslib.citation.volume	2	en_US
utslib.citation.volume	82	en_US
utslib.for	1102 Cardiorespiratory Medicine and Haematology	en_US
utslib.for	1103 Clinical Sciences	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access
pubs.issue	2	en_US
pubs.publication-status	Published	en_US
pubs.volume	82	en_US

Abstract:

© The Author(s) 2018. Introduction: Refractory breathlessness occurs at rest or on minimal exertion and persists chronically despite optimal treatment of the underlying cause. The burden and prevalence of breathlessness is high, yet symptoms remain under-treated and those affected struggle daily with the condition. This study aims to gain a greater understanding of the lived experience of refractory breathlessness and its effect on daily activities. Method: Participants were recruited from a Sydney-based outpatient breathlessness clinic. An exploratory qualitative approach was undertaken with individual, semi-structured interviews, using NVivo software to conduct thematic analysis. The study recruited consecutive patients until thematic saturation was reached. Results: Six participants were interviewed and four main themes identified. 1. Living on the edge, referring to the extreme feeling of breathlessness experienced by patients; 2. Social meanings of breathlessness, describing the significance of social support; 3. Reduced to the basics, referring to the effect breathlessness has on basic daily tasks; and 4. Sources of security, which describes the measures participants take to protect themselves from their own breathlessness. Conclusion: Participants noted the importance of functional participation for improved engagement and quality of life. There is scope to develop specific interventions and occupational therapy services incorporating self-management and equipment prescription for people with dyspnoea.

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http://hdl.handle.net/10453/136555