Research with vulnerable families caring for children with life-limiting conditions.
- Publication Type:
- Journal Article
- Citation:
- Qual Health Res, 2010, 20 (4), pp. 496 - 505
- Issue Date:
- 2010-04
Closed Access
Filename | Description | Size | |||
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2009008563OK.pdf | 193.18 kB | Adobe PDF |
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Full metadata record
Field | Value | Language |
---|---|---|
dc.contributor.author | Stevens, MM | en_US |
dc.contributor.author | Lord, BA | en_US |
dc.contributor.author | Proctor, M-T | en_US |
dc.contributor.author | Nagy, S | en_US |
dc.contributor.author | O'Riordan, E | en_US |
dc.date.issued | 2010-04 | en_US |
dc.identifier.citation | Qual Health Res, 2010, 20 (4), pp. 496 - 505 | en_US |
dc.identifier.issn | 1049-7323 | en_US |
dc.identifier.uri | http://hdl.handle.net/10453/13751 | |
dc.description.abstract | Methodological challenges associated with sensitive research, such as research with vulnerable families, have been well described, but there are few examples of how such challenges have been addressed in specific projects. To help address this gap, we describe how we designed and conducted a qualitative study of 91 members of 29 families caring for children or young people with life-limiting conditions. Although some issues associated with researching sensitive topics were anticipated, others were encountered that were not expected. We discuss insights gained from this study in relation to factors that influence effectiveness of recruitment, the quality of data collection, and the safety of participants and researchers. | en_US |
dc.language | eng | en_US |
dc.relation.ispartof | Qual Health Res | en_US |
dc.relation.isbasedon | 10.1177/1049732309356097 | en_US |
dc.subject.classification | Nursing | en_US |
dc.subject.mesh | Humans | en_US |
dc.subject.mesh | Family | en_US |
dc.subject.mesh | Child Welfare | en_US |
dc.subject.mesh | Adolescent | en_US |
dc.subject.mesh | Adult | en_US |
dc.subject.mesh | Aged | en_US |
dc.subject.mesh | Middle Aged | en_US |
dc.subject.mesh | Child | en_US |
dc.subject.mesh | Caregivers | en_US |
dc.subject.mesh | Terminally Ill | en_US |
dc.subject.mesh | Vulnerable Populations | en_US |
dc.subject.mesh | Female | en_US |
dc.subject.mesh | Male | en_US |
dc.subject.mesh | Interviews as Topic | en_US |
dc.subject.mesh | Young Adult | en_US |
dc.title | Research with vulnerable families caring for children with life-limiting conditions. | en_US |
dc.type | Journal Article | |
utslib.citation.volume | 4 | en_US |
utslib.citation.volume | 20 | en_US |
utslib.location.activity | United States | en_US |
utslib.for | 1117 Public Health and Health Services | en_US |
utslib.for | 11 Medical and Health Sciences | en_US |
utslib.for | 16 Studies in Human Society | en_US |
utslib.for | 17 Psychology and Cognitive Sciences | en_US |
dc.location.activity | ISI:000275444400005 | en_US |
dc.location.activity | Sydney, Australia | |
pubs.embargo.period | Not known | en_US |
pubs.organisational-group | /University of Technology Sydney | |
pubs.organisational-group | /University of Technology Sydney/Faculty of Health | |
pubs.organisational-group | /University of Technology Sydney/Faculty of Science | |
pubs.organisational-group | /University of Technology Sydney/Faculty of Science/School of Chemistry and Forensic Science | |
utslib.copyright.status | closed_access | |
pubs.issue | 4 | en_US |
pubs.publication-status | Published | en_US |
pubs.volume | 20 | en_US |
Abstract:
Methodological challenges associated with sensitive research, such as research with vulnerable families, have been well described, but there are few examples of how such challenges have been addressed in specific projects. To help address this gap, we describe how we designed and conducted a qualitative study of 91 members of 29 families caring for children or young people with life-limiting conditions. Although some issues associated with researching sensitive topics were anticipated, others were encountered that were not expected. We discuss insights gained from this study in relation to factors that influence effectiveness of recruitment, the quality of data collection, and the safety of participants and researchers.
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