Approaches for Authentic Engagement: Younger Onset Dementia

Frost, D; Dillon, S; Grady, S; Thurlow, J; Leong, TW; Bell, J

Approaches for Authentic Engagement: Younger Onset Dementia

Frost, D Dillon, S Grady, S Thurlow, J Leong, TW Bell, J

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Publisher:: Springer Nature
Publication Type:: Chapter
Citation:: HCI and Design in the Context of Dementia, 2020, pp. 77-93
Issue Date:: 2020-07-16

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Field	Value	Language
dc.contributor.author	Frost, D
dc.contributor.author	Dillon, S
dc.contributor.author	Grady, S
dc.contributor.author	Thurlow, J
dc.contributor.author	Leong, TW
dc.contributor.author	Bell, J https://orcid.org/0000-0001-6813-8346
dc.date.accessioned	2021-02-21T04:04:03Z
dc.date.available	2021-02-21T04:04:03Z
dc.date.issued	2020-07-16
dc.identifier.citation	HCI and Design in the Context of Dementia, 2020, pp. 77-93
dc.identifier.isbn	303032835X
dc.identifier.isbn	9783030328351
dc.identifier.uri	http://hdl.handle.net/10453/146243
dc.description.abstract	Efforts in Human–Computer Interaction (HCI) to better understand the experiences of people with dementia should consider a bespoke approach; one that is not only responsive to the individual’s situation and circumstances but at the same time, thoughtful, sensitive, and respectful. Adopting a bespoke approach is a relatively unexplored idea in research, also for those in HCI designing digital technologies in dementia settings. We don’t often hear about a bespoke approach in current corpus of HCI methodologies when researching and designing in sensitive settings. Also, most efforts in HCI and dementia have been primarily focused on the elderly in the more advanced stages of dementia. In this chapter, we focus specifically on individuals with Younger Onset Dementia (YOD). This is because individuals with YOD are an underrepresented group in social, medical, and government systems with most research and design efforts directed at those with Late-Onset Dementia (LOD). Based on our research collaborations with individuals living with YOD, we wish to offer the HCI community a more nuanced understanding of dementia. Our collaborative and immersive research approach also offers insights for how HCI can better tailor and even design their methodologies and research tools when researching and designing with and for those living with YOD
dc.format.extent	22
dc.language	en
dc.publisher	Springer Nature
dc.relation.ispartof	HCI and Design in the Context of Dementia
dc.relation.isbasedon	10.1007/978-3-030-32835-1_6
dc.rights	info:eu-repo/semantics/closedAccess
dc.title	Approaches for Authentic Engagement: Younger Onset Dementia
dc.type	Chapter
pubs.organisational-group	/University of Technology Sydney/Faculty of Engineering and Information Technology
pubs.organisational-group	/University of Technology Sydney
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2021-02-21T04:03:54Z
pubs.place-of-publication	Switzerland
pubs.publication-status	Published
dc.location	Switzerland

Abstract:

Efforts in Human–Computer Interaction (HCI) to better understand the experiences of people with dementia should consider a bespoke approach; one that is not only responsive to the individual’s situation and circumstances but at the same time, thoughtful, sensitive, and respectful. Adopting a bespoke approach is a relatively unexplored idea in research, also for those in HCI designing digital technologies in dementia settings. We don’t often hear about a bespoke approach in current corpus of HCI methodologies when researching and designing in sensitive settings. Also, most efforts in HCI and dementia have been primarily focused on the elderly in the more advanced stages of dementia. In this chapter, we focus specifically on individuals with Younger Onset Dementia (YOD). This is because individuals with YOD are an underrepresented group in social, medical, and government systems with most research and design efforts directed at those with Late-Onset Dementia (LOD). Based on our research collaborations with individuals living with YOD, we wish to offer the HCI community a more nuanced understanding of dementia. Our collaborative and immersive research approach also offers insights for how HCI can better tailor and even design their methodologies and research tools when researching and designing with and for those living with YOD

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http://hdl.handle.net/10453/146243