"I'm not doing that." An in-depth examination of nonparticipation in mail-out bowel cancer screening programs.

Goodwin, BC; March, S; Crawford-Williams, F; Chambers, SK; Dunn, J

"I'm not doing that." An in-depth examination of nonparticipation in mail-out bowel cancer screening programs.

Goodwin, BC March, S Crawford-Williams, F Chambers, SK Dunn, J

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Publisher:: Oxford University Press (OUP)
Publication Type:: Journal Article
Citation:: Translational Behavioral Medicine, 2020, 10, (6), pp. 1515-1524
Issue Date:: 2020-12

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Field	Value	Language
dc.contributor.author	Goodwin, BC
dc.contributor.author	March, S
dc.contributor.author	Crawford-Williams, F
dc.contributor.author	Chambers, SK
dc.contributor.author	Dunn, J
dc.date.accessioned	2021-03-25T00:03:32Z
dc.date.available	2021-03-25T00:03:32Z
dc.date.issued	2020-12
dc.identifier.citation	Translational Behavioral Medicine, 2020, 10, (6), pp. 1515-1524
dc.identifier.issn	1613-9860
dc.identifier.issn	1613-9860
dc.identifier.uri	http://hdl.handle.net/10453/147513
dc.description.abstract	Despite a clear association between the early detection of bowel cancer and increased survival, participation in mail-out screening programs is poor. Several key barriers to participation have been identified, yet research has failed to examine the specific cognitions, actions, and individual contexts from which barriers emerge. The purpose of the current study was to gain a detailed understanding of the actual experience of kit receipt from the perspective of nonparticipants including their opinion on interventions that may be effective in promoting participation. Demographic differences in reasons for nonparticipation are also examined. Opt-out data from a national program was analyzed to detect demographic differences in reasons for nonparticipation. Qualitative interviews were conducted in a sample of "at risk" nonparticipants. Thematic analysis was conducted using an inductive phenomenological approach. Older, higher SES, male and previously screened participants were more likely to provide a medical reason for opting out of participation. Four key themes emerged from interview data. The first reflected intention; whereby participants were either intenders (i.e., they planned to participate) or refusers. Subsequent themes reflected practicalities, emotional reactions, and necessity. Differences between intenders and refusers within these themes as well as opinions regarding interventions were identified. Interventions involving interactions with health professionals, autonomous decision making, and those which emphasize the positive outcomes of screening may encourage refusers to participate in mail-out bowel cancer screening programs. Messages that reinforce the importance of screening or provide a practical reminder may be more useful for intenders.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Oxford University Press (OUP)
dc.relation.ispartof	Translational Behavioral Medicine
dc.relation.isbasedon	10.1093/tbm/ibz096
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences, 1112 Oncology and Carcinogenesis
dc.title	"I'm not doing that." An in-depth examination of nonparticipation in mail-out bowel cancer screening programs.
dc.type	Journal Article
utslib.citation.volume	10
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1112 Oncology and Carcinogenesis
utslib.for	1103 Clinical Sciences
utslib.for	1112 Oncology and Carcinogenesis
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
pubs.consider-herdc	true
dc.date.updated	2021-03-25T00:03:28Z
pubs.issue	6
pubs.publication-status	Published
pubs.volume	10
utslib.citation.issue	6

Abstract:

Despite a clear association between the early detection of bowel cancer and increased survival, participation in mail-out screening programs is poor. Several key barriers to participation have been identified, yet research has failed to examine the specific cognitions, actions, and individual contexts from which barriers emerge. The purpose of the current study was to gain a detailed understanding of the actual experience of kit receipt from the perspective of nonparticipants including their opinion on interventions that may be effective in promoting participation. Demographic differences in reasons for nonparticipation are also examined. Opt-out data from a national program was analyzed to detect demographic differences in reasons for nonparticipation. Qualitative interviews were conducted in a sample of "at risk" nonparticipants. Thematic analysis was conducted using an inductive phenomenological approach. Older, higher SES, male and previously screened participants were more likely to provide a medical reason for opting out of participation. Four key themes emerged from interview data. The first reflected intention; whereby participants were either intenders (i.e., they planned to participate) or refusers. Subsequent themes reflected practicalities, emotional reactions, and necessity. Differences between intenders and refusers within these themes as well as opinions regarding interventions were identified. Interventions involving interactions with health professionals, autonomous decision making, and those which emphasize the positive outcomes of screening may encourage refusers to participate in mail-out bowel cancer screening programs. Messages that reinforce the importance of screening or provide a practical reminder may be more useful for intenders.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/147513