Willingness of blood donors in Australia to provide additional data and blood sample for health research.

Karki, S; Gemelli, CN; Davison, TE; Masser, BM; Marks, DC; Bell, K; Liu, B; Hayen, A; van den Hurk, K; Irving, DO

Willingness of blood donors in Australia to provide additional data and blood sample for health research.

Karki, S Gemelli, CN Davison, TE Masser, BM Marks, DC Bell, K Liu, B Hayen, A

van den Hurk, K Irving, DO

Permalink

Publisher:: Wiley
Publication Type:: Journal Article
Citation:: Transfusion, 2021, 61, (10), pp. 2855-2861
Issue Date:: 2021-10

Closed Access

	Filename	Description	Size
	trf.16629.pdf		559.37 kB	Adobe PDF	View/Open

Copyright Clearance Process

Recently Added
In Progress
Closed Access

This item is closed access and not available.

Full metadata record

Field	Value	Language
dc.contributor.author	Karki, S
dc.contributor.author	Gemelli, CN
dc.contributor.author	Davison, TE
dc.contributor.author	Masser, BM
dc.contributor.author	Marks, DC
dc.contributor.author	Bell, K
dc.contributor.author	Liu, B
dc.contributor.author	Hayen, A https://orcid.org/0000-0003-4046-8030
dc.contributor.author	van den Hurk, K
dc.contributor.author	Irving, DO
dc.date.accessioned	2021-11-05T03:20:13Z
dc.date.available	2021-07-05
dc.date.available	2021-11-05T03:20:13Z
dc.date.issued	2021-10
dc.identifier.citation	Transfusion, 2021, 61, (10), pp. 2855-2861
dc.identifier.issn	0041-1132
dc.identifier.issn	1537-2995
dc.identifier.uri	http://hdl.handle.net/10453/151355
dc.description.abstract	Background Many blood collection agencies are generating important data on donor health outcomes using large-scale blood donor cohort studies. Such studies can be very effective when donors provide access to linkage of their data to external health databases, and storage and genomic testing of their blood sample. In this study, we aimed to assess the willingness of Australian blood donors to provide additional data and blood sample for donation-related and other health research. Study design and methods We invited 2017 donors to complete a survey using four methods (postal letter, postal letter and email, email only, and in-center recruitment). The survey asked for information on demographics, lifestyle behaviors, health, experience and attitude to blood donation, and willingness to give blood sample and additional data for research. Results Response rates ranged from 23.8% for email only to 77.2% for in-center recruitment. Of those who responded (n = 827), 95.5% indicated they would be willing to provide a blood sample for donation and transfusion-related research. Of these, >90.0% were willing for their sample to be used in research involving genetic testing and other health-related topics. Also, >90.0% were willing to consent for linkage of their information to external health databases. Conclusions Donors surveyed reported a high willingness to participate in health research by completing surveys, allowing linkage to external datasets, and providing a blood sample. These findings provide strong support for future longitudinal research studies with Australian blood donors.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	Transfusion
dc.relation.isbasedon	10.1111/trf.16629
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1102 Cardiorespiratory Medicine and Haematology, 1103 Clinical Sciences, 1107 Immunology
dc.subject.classification	Cardiovascular System & Hematology
dc.title	Willingness of blood donors in Australia to provide additional data and blood sample for health research.
dc.type	Journal Article
utslib.citation.volume	61
utslib.location.activity	United States
utslib.for	1102 Cardiorespiratory Medicine and Haematology
utslib.for	1103 Clinical Sciences
utslib.for	1107 Immunology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Public Health
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2021-11-05T03:20:10Z
pubs.issue	10
pubs.publication-status	Published
pubs.volume	61
utslib.citation.issue	10

Abstract:

Background Many blood collection agencies are generating important data on donor health outcomes using large-scale blood donor cohort studies. Such studies can be very effective when donors provide access to linkage of their data to external health databases, and storage and genomic testing of their blood sample. In this study, we aimed to assess the willingness of Australian blood donors to provide additional data and blood sample for donation-related and other health research. Study design and methods We invited 2017 donors to complete a survey using four methods (postal letter, postal letter and email, email only, and in-center recruitment). The survey asked for information on demographics, lifestyle behaviors, health, experience and attitude to blood donation, and willingness to give blood sample and additional data for research. Results Response rates ranged from 23.8% for email only to 77.2% for in-center recruitment. Of those who responded (n = 827), 95.5% indicated they would be willing to provide a blood sample for donation and transfusion-related research. Of these, >90.0% were willing for their sample to be used in research involving genetic testing and other health-related topics. Also, >90.0% were willing to consent for linkage of their information to external health databases. Conclusions Donors surveyed reported a high willingness to participate in health research by completing surveys, allowing linkage to external datasets, and providing a blood sample. These findings provide strong support for future longitudinal research studies with Australian blood donors.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/151355