Bereavement outcomes of carers of patients with high grade glioma: Experiences of support before and after the death.

Lobb, EA; Halkett, GKB; McDougall, E; Campbell, R; Dhillon, HM; Phillips, JL; Nowak, AK

Bereavement outcomes of carers of patients with high grade glioma: Experiences of support before and after the death.

Lobb, EA Halkett, GKB McDougall, E Campbell, R Dhillon, HM Phillips, JL Nowak, AK

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Publisher:: ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
Publication Type:: Journal Article
Citation:: Death Stud, 2023, 47, (10), pp. 1094-1103
Issue Date:: 2023

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Field	Value	Language
dc.contributor.author	Lobb, EA
dc.contributor.author	Halkett, GKB
dc.contributor.author	McDougall, E
dc.contributor.author	Campbell, R
dc.contributor.author	Dhillon, HM
dc.contributor.author	Phillips, JL
dc.contributor.author	Nowak, AK
dc.date.accessioned	2023-10-09T03:30:10Z
dc.date.available	2023-10-09T03:30:10Z
dc.date.issued	2023
dc.identifier.citation	Death Stud, 2023, 47, (10), pp. 1094-1103
dc.identifier.issn	0748-1187
dc.identifier.issn	1091-7683
dc.identifier.uri	http://hdl.handle.net/10453/172583
dc.description.abstract	Carers of people with High Grade Glioma (HGG) completed a survey assessing their anxiety, depression, and grief in addition to open-ended questions exploring their experiences of support pre- and post-death (N = 25). One-third reported borderline or clinical levels of anxiety, depression, and grief related distress. Given the poor prognosis and rapid deterioration of patients with HGG, the findings highlight the importance of sensitive communication about prognosis early in the disease trajectory, information tailored to disease stage, the initiation of a referral to psychological support services, and timely discussions about the preferred place of care and death.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
dc.relation.ispartof	Death Stud
dc.relation.isbasedon	10.1080/07481187.2023.2167888
dc.rights	info:eu-repo/semantics/embargoedAccess
dc.rights	"This is an Accepted Manuscript of an article published by Taylor & Francis in [Death Stud, 2023, 47, (10), pp. 1094-1103] on [2023], available online: http://doi.org/10.1080/07481187.2023.2167888]."
dc.subject	1701 Psychology
dc.subject.classification	Clinical Psychology
dc.subject.classification	4410 Sociology
dc.subject.classification	5201 Applied and developmental psychology
dc.subject.classification	5203 Clinical and health psychology
dc.subject.mesh	Humans
dc.subject.mesh	Caregivers
dc.subject.mesh	Bereavement
dc.subject.mesh	Grief
dc.subject.mesh	Glioma
dc.subject.mesh	Anxiety
dc.subject.mesh	Humans
dc.subject.mesh	Glioma
dc.subject.mesh	Anxiety
dc.subject.mesh	Bereavement
dc.subject.mesh	Grief
dc.subject.mesh	Caregivers
dc.subject.mesh	Humans
dc.subject.mesh	Caregivers
dc.subject.mesh	Bereavement
dc.subject.mesh	Grief
dc.subject.mesh	Glioma
dc.subject.mesh	Anxiety
dc.title	Bereavement outcomes of carers of patients with high grade glioma: Experiences of support before and after the death.
dc.type	Journal Article
utslib.citation.volume	47
utslib.location.activity	United States
utslib.for	1701 Psychology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHT - Health Technologies
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
pubs.organisational-group	/University of Technology Sydney/Centre for Health Technologies (CHT)
utslib.copyright.status	open_access	*
utslib.copyright.embargo	2024-08-14T00:00:00+1000Z
dc.date.updated	2023-10-09T03:30:09Z
pubs.issue	10
pubs.publication-status	Published
pubs.volume	47
utslib.citation.issue	10

Abstract:

Carers of people with High Grade Glioma (HGG) completed a survey assessing their anxiety, depression, and grief in addition to open-ended questions exploring their experiences of support pre- and post-death (N = 25). One-third reported borderline or clinical levels of anxiety, depression, and grief related distress. Given the poor prognosis and rapid deterioration of patients with HGG, the findings highlight the importance of sensitive communication about prognosis early in the disease trajectory, information tailored to disease stage, the initiation of a referral to psychological support services, and timely discussions about the preferred place of care and death.

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http://hdl.handle.net/10453/172583