“The Kitchen is My Favrote Place in the House”: A World Worth Living in for Children with Feeding Difficulties and Their Families

Hopwood, N; Gowans, H; Gowans, J; Disher-Quill, K; Elliot, C

“The Kitchen is My Favrote Place in the House”: A World Worth Living in for Children with Feeding Difficulties and Their Families

Hopwood, N

Gowans, H Gowans, J Disher-Quill, K Elliot, C

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Publisher:: Springer
Publication Type:: Chapter
Citation:: Living Well in a World Worth Living in for All: Volume 1: Current Practices of Social Justice, Sustainability and Wellbeing, 2023, pp. 191-209
Issue Date:: 2023-01-01

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Field	Value	Language
dc.contributor.author	Hopwood, N https://orcid.org/0000-0003-2149-5834
dc.contributor.author	Gowans, H
dc.contributor.author	Gowans, J
dc.contributor.author	Disher-Quill, K
dc.contributor.author	Elliot, C
dc.date.accessioned	2023-10-15T20:58:02Z
dc.date.available	2023-10-15T20:58:02Z
dc.date.issued	2023-01-01
dc.identifier.citation	Living Well in a World Worth Living in for All: Volume 1: Current Practices of Social Justice, Sustainability and Wellbeing, 2023, pp. 191-209
dc.identifier.isbn	9789811979842
dc.identifier.uri	http://hdl.handle.net/10453/172670
dc.description.abstract	We cannot live well without food. However, a significant number of chil-dren experience medical issues that impact their feeding, in some cases requiring feeding via a tube. The SUCCEED Child Feeding Alliance recognises the challenges that tube-feeding presents, and collaborates with parents, healthcare providers, and others to take steps towards a world in which all children who tube-feed thrive, experiencing the full joys of childhood, and agentically pursuing the futures of their own making. This chapter is inspired by Henry, who despite an ongoing need to tube-feed, has a passion for cooking, and wants to be a chef when he is older. We explore the challenges and praxis of tube-feeding, and different responsibilities and opportunities we have as adults in promoting positive change—from perspectives as parent, clinician, artist, and researcher. This dialogue is infused with theoretical insights from the theory of practice architectures, and Stetsenko’s transformative activist stance, which draws our attention to ways in which we contribute individu-ally and collectively to the future that ought to be. We conclude by presenting one of Chef Henry’s own recipes.
dc.format.extent	13
dc.language	en
dc.publisher	Springer
dc.relation.ispartof	Living Well in a World Worth Living in for All: Volume 1: Current Practices of Social Justice, Sustainability and Wellbeing
dc.relation.isbasedon	10.1007/978-981-19-7985-9_11
dc.rights	info:eu-repo/semantics/openAccess
dc.title	“The Kitchen is My Favrote Place in the House”: A World Worth Living in for Children with Feeding Difficulties and Their Families
dc.type	Chapter
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Arts and Social Sciences
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.date.updated	2023-10-15T20:58:01Z
pubs.place-of-publication	The Netherlands
pubs.publication-status	Published
dc.location	The Netherlands

Abstract:

We cannot live well without food. However, a significant number of chil-dren experience medical issues that impact their feeding, in some cases requiring feeding via a tube. The SUCCEED Child Feeding Alliance recognises the challenges that tube-feeding presents, and collaborates with parents, healthcare providers, and others to take steps towards a world in which all children who tube-feed thrive, experiencing the full joys of childhood, and agentically pursuing the futures of their own making. This chapter is inspired by Henry, who despite an ongoing need to tube-feed, has a passion for cooking, and wants to be a chef when he is older. We explore the challenges and praxis of tube-feeding, and different responsibilities and opportunities we have as adults in promoting positive change—from perspectives as parent, clinician, artist, and researcher. This dialogue is infused with theoretical insights from the theory of practice architectures, and Stetsenko’s transformative activist stance, which draws our attention to ways in which we contribute individu-ally and collectively to the future that ought to be. We conclude by presenting one of Chef Henry’s own recipes.

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http://hdl.handle.net/10453/172670