Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective.

Engel, L; Bailey, C; Bogatyreva, E; Batchelor, F; Devlin, N; Dow, B; Gilbert, AS; Mulhern, B; Viney, R; Peasgood, T

Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective.

Engel, L Bailey, C Bogatyreva, E Batchelor, F Devlin, N Dow, B Gilbert, AS Mulhern, B

Viney, R Peasgood, T

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Publisher:: Springer Nature
Publication Type:: Journal Article
Citation:: Patient, 2024, pp. 1-11
Issue Date:: 2024-09-05

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Field	Value	Language
dc.contributor.author	Engel, L
dc.contributor.author	Bailey, C
dc.contributor.author	Bogatyreva, E
dc.contributor.author	Batchelor, F
dc.contributor.author	Devlin, N
dc.contributor.author	Dow, B
dc.contributor.author	Gilbert, AS
dc.contributor.author	Mulhern, B https://orcid.org/0000-0003-3656-8063
dc.contributor.author	Viney, R
dc.contributor.author	Peasgood, T
dc.date.accessioned	2024-09-25T04:16:58Z
dc.date.available	2024-08-12
dc.date.available	2024-09-25T04:16:58Z
dc.date.issued	2024-09-05
dc.identifier.citation	Patient, 2024, pp. 1-11
dc.identifier.issn	1178-1653
dc.identifier.issn	1178-1661
dc.identifier.uri	http://hdl.handle.net/10453/180971
dc.description.abstract	BACKGROUND AND OBJECTIVE: The EQ Health and Wellbeing (EQ-HWB) is a new generic quality-of-life measure for use in evaluating interventions in health, public health and social care. This study aimed to explore proxies' views regarding the appropriateness of the EQ-HWB for measuring residents' quality of life living in residential aged care facilities. METHODS: Qualitative think-aloud and semi-structured interviews were conducted with family members and aged care staff across three facilities in Melbourne, Australia. Proxies completed the 25-item EQ-HWB proxy version 2 (i.e. proxy-person perspective) whilst talking through the reasons for choosing their response. All interviews were audio-recorded and transcribed verbatim. A thematic analysis was used for data analysis. RESULTS: The sample included 29 proxies; nine family members and 20 aged care staff. The first theme summarised proxies' ability to proxy report residents' health and well-being using the EQ-HWB, which highlighted challenges with adherence to the proxy perspective, proxies' limited knowledge about residents, disagreement with residents' self-evaluation and use of heuristics. The second theme reflected feedback on the suitability of the EQ-HWB for use in residential aged care. Although proxies perceived that the EQ-HWB covered important domains, there were concerns about ambiguity, inappropriate examples, double-barrelled items and perceived repetition. Suggestions were made to improve the response options, comprehensiveness, recall period, layout and instructions of the questionnaire. CONCLUSIONS: While the EQ-HWB captures domains relevant to residential aged care, modifications to item wording and examples are necessary to improve its appropriateness. Use of the proxy-person perspective revealed some challenges that require further consideration.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Springer Nature
dc.relation.ispartof	Patient
dc.relation.isbasedon	10.1007/s40271-024-00715-5
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	42 Health sciences
dc.title	Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective.
dc.type	Journal Article
utslib.location.activity	New Zealand
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Strength - CHERE - Centre for Health Economics Research and Evaluation
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Research Centres/Centre for Health Economics Research and Evaluation
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Centre for Health Economics Research and Evaluation (CHERE)
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Research Centres
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc/4.0/
dc.date.updated	2024-09-25T04:16:56Z
pubs.publication-status	Published online

Abstract:

BACKGROUND AND OBJECTIVE: The EQ Health and Wellbeing (EQ-HWB) is a new generic quality-of-life measure for use in evaluating interventions in health, public health and social care. This study aimed to explore proxies' views regarding the appropriateness of the EQ-HWB for measuring residents' quality of life living in residential aged care facilities. METHODS: Qualitative think-aloud and semi-structured interviews were conducted with family members and aged care staff across three facilities in Melbourne, Australia. Proxies completed the 25-item EQ-HWB proxy version 2 (i.e. proxy-person perspective) whilst talking through the reasons for choosing their response. All interviews were audio-recorded and transcribed verbatim. A thematic analysis was used for data analysis. RESULTS: The sample included 29 proxies; nine family members and 20 aged care staff. The first theme summarised proxies' ability to proxy report residents' health and well-being using the EQ-HWB, which highlighted challenges with adherence to the proxy perspective, proxies' limited knowledge about residents, disagreement with residents' self-evaluation and use of heuristics. The second theme reflected feedback on the suitability of the EQ-HWB for use in residential aged care. Although proxies perceived that the EQ-HWB covered important domains, there were concerns about ambiguity, inappropriate examples, double-barrelled items and perceived repetition. Suggestions were made to improve the response options, comprehensiveness, recall period, layout and instructions of the questionnaire. CONCLUSIONS: While the EQ-HWB captures domains relevant to residential aged care, modifications to item wording and examples are necessary to improve its appropriateness. Use of the proxy-person perspective revealed some challenges that require further consideration.

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http://hdl.handle.net/10453/180971