Exploring the experience of service users following attendance at a student-led interprofessional neurodevelopmental clinic.

Garavelis, KN; Hayes, N; Rose, TA; Maloney, M; Liddle, K; Moritz, K; Gullo, M; Gullo, HL; McMah, R; Heussler, H; Reid, N

Exploring the experience of service users following attendance at a student-led interprofessional neurodevelopmental clinic.

Garavelis, KN Hayes, N Rose, TA Maloney, M Liddle, K Moritz, K Gullo, M Gullo, HL McMah, R Heussler, H Reid, N

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Publisher:: TAYLOR & FRANCIS LTD
Publication Type:: Journal Article
Citation:: Disabil Rehabil, 2024, 46, (7), pp. 1-11
Issue Date:: 2024

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Field	Value	Language
dc.contributor.author	Garavelis, KN
dc.contributor.author	Hayes, N
dc.contributor.author	Rose, TA
dc.contributor.author	Maloney, M
dc.contributor.author	Liddle, K
dc.contributor.author	Moritz, K
dc.contributor.author	Gullo, M
dc.contributor.author	Gullo, HL
dc.contributor.author	McMah, R
dc.contributor.author	Heussler, H
dc.contributor.author	Reid, N
dc.date.accessioned	2024-12-12T02:04:04Z
dc.date.available	2024-12-12T02:04:04Z
dc.date.issued	2024
dc.identifier.citation	Disabil Rehabil, 2024, 46, (7), pp. 1-11
dc.identifier.issn	0963-8288
dc.identifier.issn	1464-5165
dc.identifier.uri	http://hdl.handle.net/10453/182490
dc.description.abstract	PURPOSE: The aim of the current study was to understand service users' experiences at a recently established student-led interprofessional neurodevelopmental clinic for children and adolescents with suspected or confirmed prenatal alcohol exposure. METHOD: Semi-structured interviews were completed at 3-months post-clinic attendance with 10 service users: eight parents/caregivers and two youth workers/case managers. Interview data were analysed thematically using NVivo12. RESULTS: Four main themes were developed: (1) clinic attendance seen as a positive event; (2) validation, clarification, and relief, but also challenges post-assessment; (3) need for further support and importance of advocacy; and (4) drawing on lived experiences for future service improvements. CONCLUSIONS: The current study demonstrated that service users reported benefits from tailored services delivered by student practitioners that were validating, supportive, and holistic. Findings from the current study can inform the development and implementation of future innovative service delivery models for individuals with suspected or confirmed prenatal alcohol exposure.IMPLICATIONS FOR REHABILITATIONPeople with fetal alcohol spectrum disorder (FASD) can experience a range of neurocognitive impairments that impact their day-to-day living.Access to assessment, early diagnosis, and appropriate supports are important protective factors associated with improved outcomes for individuals with FASD.Results highlighted the benefits to rehabilitation professionals of listening to service users to understand the complexity of their lived experiences, including how this information can be used to improve service design and delivery.Results also highlighted the potential role of incorporating student-led clinics within models of healthcare and rehabilitation service delivery.Utilising student-led clinics can help to increase access to specialised services for underserved groups in our community, combat shortages in the health workforce, reduce burden on the public health system, and educate the future of rehabilitation professionals.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	TAYLOR & FRANCIS LTD
dc.relation.ispartof	Disabil Rehabil
dc.relation.isbasedon	10.1080/09638288.2023.2193430
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Rehabilitation
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	42 Health sciences
dc.subject.classification	44 Human society
dc.subject.mesh	Child
dc.subject.mesh	Adolescent
dc.subject.mesh	Humans
dc.subject.mesh	Female
dc.subject.mesh	Pregnancy
dc.subject.mesh	Prenatal Exposure Delayed Effects
dc.subject.mesh	Parents
dc.subject.mesh	Students
dc.subject.mesh	Caregivers
dc.subject.mesh	Ambulatory Care Facilities
dc.subject.mesh	Humans
dc.subject.mesh	Prenatal Exposure Delayed Effects
dc.subject.mesh	Parents
dc.subject.mesh	Pregnancy
dc.subject.mesh	Students
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	Caregivers
dc.subject.mesh	Ambulatory Care Facilities
dc.subject.mesh	Female
dc.subject.mesh	Child
dc.subject.mesh	Adolescent
dc.subject.mesh	Humans
dc.subject.mesh	Female
dc.subject.mesh	Pregnancy
dc.subject.mesh	Prenatal Exposure Delayed Effects
dc.subject.mesh	Parents
dc.subject.mesh	Students
dc.subject.mesh	Caregivers
dc.subject.mesh	Ambulatory Care Facilities
dc.title	Exploring the experience of service users following attendance at a student-led interprofessional neurodevelopmental clinic.
dc.type	Journal Article
utslib.citation.volume	46
utslib.location.activity	England
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.date.updated	2024-12-12T02:04:02Z
pubs.issue	7
pubs.publication-status	Published online
pubs.volume	46
utslib.citation.issue	7

Abstract:

PURPOSE: The aim of the current study was to understand service users' experiences at a recently established student-led interprofessional neurodevelopmental clinic for children and adolescents with suspected or confirmed prenatal alcohol exposure. METHOD: Semi-structured interviews were completed at 3-months post-clinic attendance with 10 service users: eight parents/caregivers and two youth workers/case managers. Interview data were analysed thematically using NVivo12. RESULTS: Four main themes were developed: (1) clinic attendance seen as a positive event; (2) validation, clarification, and relief, but also challenges post-assessment; (3) need for further support and importance of advocacy; and (4) drawing on lived experiences for future service improvements. CONCLUSIONS: The current study demonstrated that service users reported benefits from tailored services delivered by student practitioners that were validating, supportive, and holistic. Findings from the current study can inform the development and implementation of future innovative service delivery models for individuals with suspected or confirmed prenatal alcohol exposure.IMPLICATIONS FOR REHABILITATIONPeople with fetal alcohol spectrum disorder (FASD) can experience a range of neurocognitive impairments that impact their day-to-day living.Access to assessment, early diagnosis, and appropriate supports are important protective factors associated with improved outcomes for individuals with FASD.Results highlighted the benefits to rehabilitation professionals of listening to service users to understand the complexity of their lived experiences, including how this information can be used to improve service design and delivery.Results also highlighted the potential role of incorporating student-led clinics within models of healthcare and rehabilitation service delivery.Utilising student-led clinics can help to increase access to specialised services for underserved groups in our community, combat shortages in the health workforce, reduce burden on the public health system, and educate the future of rehabilitation professionals.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/182490