Palliative care case conferences in long-term care: Views of family members

Parker, D; Clifton, K; Tuckett, A; Walker, H; Reymond, E; Prior, T; Mcanelly, K; Jenkin, P; Israel, F; Greeve, K; Glaetzer, K

Palliative care case conferences in long-term care: Views of family members

Parker, D

Clifton, K Tuckett, A Walker, H Reymond, E Prior, T Mcanelly, K Jenkin, P Israel, F Greeve, K Glaetzer, K

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Publication Type:: Journal Article
Citation:: International Journal of Older People Nursing, 2016, 11 (2), pp. 140 - 148
Issue Date:: 2016-06-01

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Field	Value	Language
dc.contributor.author	Parker, D https://orcid.org/0000-0003-2552-8613	en_US
dc.contributor.author	Clifton, K	en_US
dc.contributor.author	Tuckett, A	en_US
dc.contributor.author	Walker, H	en_US
dc.contributor.author	Reymond, E	en_US
dc.contributor.author	Prior, T	en_US
dc.contributor.author	Mcanelly, K	en_US
dc.contributor.author	Jenkin, P	en_US
dc.contributor.author	Israel, F	en_US
dc.contributor.author	Greeve, K	en_US
dc.contributor.author	Glaetzer, K	en_US
dc.date.available	2015-07-13	en_US
dc.date.issued	2016-06-01	en_US
dc.identifier.citation	International Journal of Older People Nursing, 2016, 11 (2), pp. 140 - 148	en_US
dc.identifier.issn	1748-3735	en_US
dc.identifier.uri	http://hdl.handle.net/10453/87520
dc.description.abstract	© 2016 John Wiley & Sons Ltd. Aims and objectives: This paper examines the use of structured Palliative Care Case Conferences in long-term care. The issues families bring to the Palliative Care Case Conference, their level of distress prior to the conference, the extent to which these issues are addressed by staff and family satisfaction with this process are described. Background: In most developed countries, up to 30% of older people die in long-term care. A palliative approach generally refers to the resident and family as the 'unit of care'. Interventions, which include family in palliative care, are required in this setting. Design: Descriptive and thematic results from the intervention arm of a pre-post, sequential mixed method study. Methods: Examination of documents of 32 resident/family dyads participating in a Palliative Care Case Conference, and interviews with the residents' family postintervention. Results: Main concerns raised by family members prior to a Palliative Care Case Conference were physical and medical needs, pain, end-of-life care planning and nutrition and hydration. Families rated a high level of concern, 7.5 on a 10-point rating scale, prior to the Palliative Care Case Conference. A formalised Palliative Care Case Conference process ensured issues relating to end-of-life care planning, pastoral care, pain and comfort and physical and medical needs were well documented by staff. Issues relating to care processes and the family role in care were less well documented. All families, interviewed postintervention, recommended Palliative Care Case Conferences; and over 90% of families felt their issues were addressed to their satisfaction. Families also reported an increased understanding of the resident's current and future care. Conclusions: The Palliative Care Case Conference in long-term care provides an important platform for family to voice concerns. Palliative Care Case Conference documentation indicates that staff are attending to these issues, although more reference to concerns relating to care processes and the family role could be made. Implications for practice: Increased communication between staff and family, in the form of a Palliative Care Case Conference, may reduce stress, anxiety and unwanted hospitalisations during the palliative phase.	en_US
dc.relation.ispartof	International Journal of Older People Nursing	en_US
dc.relation.isbasedon	10.1111/opn.12105	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Long-Term Care	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Professional-Family Relations	en_US
dc.subject.mesh	Nutritional Status	en_US
dc.subject.mesh	Quality of Life	en_US
dc.subject.mesh	Needs Assessment	en_US
dc.subject.mesh	Aged	en_US
dc.subject.mesh	Aged, 80 and over	en_US
dc.subject.mesh	Middle Aged	en_US
dc.subject.mesh	Australia	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.subject.mesh	Pain Management	en_US
dc.subject.mesh	Patient Comfort	en_US
dc.title	Palliative care case conferences in long-term care: Views of family members	en_US
dc.type	Journal Article
utslib.citation.volume	2	en_US
utslib.citation.volume	11	en_US
utslib.for	1110 Nursing	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Nursing
utslib.copyright.status	closed_access
pubs.issue	2	en_US
pubs.publication-status	Published	en_US
pubs.volume	11	en_US

Abstract:

© 2016 John Wiley & Sons Ltd. Aims and objectives: This paper examines the use of structured Palliative Care Case Conferences in long-term care. The issues families bring to the Palliative Care Case Conference, their level of distress prior to the conference, the extent to which these issues are addressed by staff and family satisfaction with this process are described. Background: In most developed countries, up to 30% of older people die in long-term care. A palliative approach generally refers to the resident and family as the 'unit of care'. Interventions, which include family in palliative care, are required in this setting. Design: Descriptive and thematic results from the intervention arm of a pre-post, sequential mixed method study. Methods: Examination of documents of 32 resident/family dyads participating in a Palliative Care Case Conference, and interviews with the residents' family postintervention. Results: Main concerns raised by family members prior to a Palliative Care Case Conference were physical and medical needs, pain, end-of-life care planning and nutrition and hydration. Families rated a high level of concern, 7.5 on a 10-point rating scale, prior to the Palliative Care Case Conference. A formalised Palliative Care Case Conference process ensured issues relating to end-of-life care planning, pastoral care, pain and comfort and physical and medical needs were well documented by staff. Issues relating to care processes and the family role in care were less well documented. All families, interviewed postintervention, recommended Palliative Care Case Conferences; and over 90% of families felt their issues were addressed to their satisfaction. Families also reported an increased understanding of the resident's current and future care. Conclusions: The Palliative Care Case Conference in long-term care provides an important platform for family to voice concerns. Palliative Care Case Conference documentation indicates that staff are attending to these issues, although more reference to concerns relating to care processes and the family role could be made. Implications for practice: Increased communication between staff and family, in the form of a Palliative Care Case Conference, may reduce stress, anxiety and unwanted hospitalisations during the palliative phase.

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http://hdl.handle.net/10453/87520